Research Project Listing
Identifying patient-oriented research priorities for pediatric erythromelalgia
Researcher: Boston Children’s Hospital
What is the purpose of the study?
We are working together to find out the most important things to learn about
erythromelalgia in kids and teens.
Who can participate?
If you are (or used to be):
- A kid or teen with erythromelalgia;
- A family member of a kid or teen with erythromelalgia; or
- A healthcare provider for kids or teens with erythromelalgia.
What do I have to do if I’m in the study? What is the time commitment for the
study? If you choose to participate in this study, we will ask you to complete a survey
that takes about 10-15 minutes.
What are the benefits of the study? Participating in this research is not of direct benefit
to you. By the end of the study, we hope to find out the most important things to research
about erythromelalgia in kids and teens.
What will I receive from participating?
There is no compensation for filling the survey. However, we will make our overall
findings available at the end of the study if you would like to sign up to receive this
information
This research is being conducted by: Charles Berde, MD, PhD
For additional information regarding this study, please contact:
Dr. Charles Berde by calling 617-355-7243 or
Dr. Don Daniel Ocay by calling 617-919-4585 or emailing
[email protected].
Access the survey here: https://redcap.link/pedempsp
OR scan the QR code of click on the URL below.
