TEA Newsletters
TEA’s newsletter, FootSteps, is a publication intended to inform the EM community, not in any way to provide medical advice.
Newsletter
EM Connections February 2024
TEA Board member retirement; member stories information; drug manufacturer updates
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EM Connections February 2023
Latest research gift; Awareness Video series; EM in the News
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EM Connections November 2022
TEA's first online newsletter EM Connections replacing the hardcopy Footsteps newsletter.
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Spring 2020
Covid-19 and those with rare diseases; a caregiver's story; National Geographic pain article discusses Yale research
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Spring 2019
20th Anniversary Edition! History of TEA; Board Member Retirement; Founding member memorial
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Spring 2018
After months of work with a website design firm, TEA’s new website went live in January. Professional, engaging, easy-to-use—all these describe the new site.
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Winter 2017
Providing education, awareness and community through our website, member services program, newsletter, social media presence and networking programs is TEA’s mission.
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September 2016
TEA has moved from an organization with annual membership dues to one with a one-time membership donation to join. Also, TEA’s website’s Articles Library...
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April 2016
If you have not seen the drug-company produced video “The Passionate Pursuit of Nav 1.7,” search YouTube or go to...
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November 2015
Micro-cooling technologies now exist that are small enough to fit inside a shoe. But, designing a cooling insole is a very complex engineering project.
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Winter 2015
“We envision a world with an end to the pain of erythromelalgia and a path to a cure.” That’s TEA’s vision, developed last year, for the first time, by the Board of Directors.
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December 2013
People with inherited EM (IEM) recently participated in trials of two experimental drugs for EM pain. The drug companies developing...
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Spring 2013
TEA’s 2012 Annual Appeal raised 77 percent more than any other appeal during the past six years—$25,714. TEA sends just one appeal for funds each year at the end of the year.
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Spring 2012
The TEA Board of Directors in March voted to gift $40,000 to Yale University to support research on erythromelalgia under the direction of Stephen G. Waxman, M.D., Ph.D.
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November 2010
Response was “tremendous” to the invitation in the last FootSteps (Vol. 11, No. 1, 2010) for volunteers with inherited erythromelalgia to join a drug trial in The Netherlands, reports...
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Winter 2009
An approximate 76 percent of the respondents to TEA’s 2008 Survey reported often getting moderate to good relief from medication. But not the same one.
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Summer 2009 – Survey Edition
This issue of FootSteps contains a question-by-question report of the findings of TEA’s 2008 Member Study. A major project for TEA...
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Winter 2008
Members gave generously in response to TEA’s first ever direct-mail appeal for donations. Mailed in Nov. 2007, the appeal had prompted gifts totaling $8,695.00 by Dec...
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Spring 2008
After months of consideration by the Board of Directors, TEA gave Yale’s EM research program $45,000 in April. The money came out
of TEA’s Research Fund.
Newsletter
March 2007
Led by dermatologist Mark D.P. Davis, M.D., physicians at the Mayo Clinic in Rochester, MN, U.S., present a new EM treatment and report results of studies testing the effectiveness of diagnostic procedures...
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December 2006
“TEA members will be pleased to hear that we are now collaborating in some new work with Dr. Joost Drenth,” said Steven G. Waxman, M.D., Ph.D., director of...
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September 2006
If you have visited TEA‘s Web site recently, you will have noticed some big changes. While member names and passwords remain the same, even the log in box has changed.
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March 2006
What’s new in treating EM will be among the subjects discussed Saturday, May 20, at a teleconference featuring Jay S. Cohen, M.D., and benefiting TEA’s Research Fund.
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December 2005
TEA is funding a research study in 2006 that aims to identify a second gene that causes inherited EM. The National Organization for Rare Disorders (NORD) in October...
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March 2005
Scientists at Yale University welcomed TEA Vice President Beth Coimbra and Board of Directors member Isabelle Davis March 7, 2005, for lunch and a tour of the...
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December 2004
TEA’s Research Fund will be put to use immediately by helping finance ongoing investigations into EM at a Yale University research center.
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September 2004
For the first time in its six-year history, TEA will fund a research study seeking answers to the mystery of erythromelalgia (EM).
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March 2004
By mid-March, more than 200 TEA members completed and returned the TEA survey about EM. TEA Vice President Beth Coimbra, who is handling the project...
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December 2003
TEA will be contacting its member during January to ask for their participation in a comprehensive survey about EM.
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September 2003
Dr. Joost Drenth is asking for our support for his research in locating the gene that causes erythromelalgia in our families.
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March 2003
A patch containing 5% lidocaine (Lidoderm) combined with gabapentin for the treatment of post-herpetic neuralgia, lower back pain and painful diabetic...
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September 2002
There appear to be several subtypes of erythromelalgia (EM) that respond to different therapies.
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March 2002
A modern chronicler of hell might look to the lives of chronic-pain patients for inspiration.
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December 2001
The Erythromelalgia Association has created a Medical Advisory Committee (MAC) to address the medical aspects of EM.
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March 2001
January brought the first official election of Directors for TEA. For the first time since TEA's inception...
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December 2000
There's never been a more important time to consider a donation to the research of erythromelalgia.
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September 2000
An amazing breakthrough has been found by our members Dr. Jay Cohen and Karl Granat.
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April 2000
This is the hottest story since our... last newsletter! All kidding aside, some of our very own TEA members have realized some success in treatments using the capsaicin creams.
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